Re: Chair aka Nelli
I have the tendancy of thinking of you 24/7 of late & wish I could do something to make you feel good :)
I don't recall much between injury and surgery beyond my halo (Monday thru Friday) but never even crutches and never a chair - I was the only person on my floor @ RIC who could walk - I can't run or ride bike, left leg drags behind right but not obviously - legs very strong.
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I don't recall much between injury and surgery beyond my halo (Monday thru Friday) but never even crutches and never a chair - I was the only person on my floor @ RIC who could walk - I can't run or ride bike, left leg drags behind right but not obviously - legs very strong.
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RE: Chair aka Nelli
Have you ever been checked out for osteoporosis? http://www.bing.com/health/article/mayo-125342/Osteoporosis?q=osteoporosis and I would not doubt you have degenerative disc disease http://www.bing.com/health/article/healthwise-1250001916/Degenerative-Disc-Disease-Topic-Overview?q=degenerative+disc+disease as I said I wish I could do something to make it all go away ... if you haven't been checked for either I would consider it. There is medication to take for osteoporosis - WIFE has it and takes a pill once a week.
The fact that you have deteriorated to the degree of needing a wheel chair makes be think you should get a second opinion. I know you like your neurosurgeon but an orthopedist may provide a better look at your spine as a whole. Your condition and how you are struggling concerns me a great deal. You need to grow old in comfort or at least comfort enough to walk, enjoy your family, travel, etc. Europe is beautiful - I could live there and may some day at least for two or three months in the dead of winter - but you could not enjoy Europe, it is not handicap friendly - cobbles, uneven surfaces, stairs not ramps and you have to walk Europe to see everything, around each corner. You need to see this if you have not, and if you have you need to go back!
I could move my legs when I got to the ER, and I was beginning to talk - I recall telling the nurse that my phone was in my back pack that had been cut off me. I laid very very still as I watched people looking down at me fitting me for my halo and drilling the halo into my skull. I recall the sound of my first of many MRIs but as I said I don't remember much more until after my surgery. MY blood pressure was sky high - I know they made me get up and I remember sitting on hard straight chair with my limp, facid left arm that was filled with IVs ... I had to pick it up and more it around, putting it on a pillow in my lap. I think I slept alot ... the morning after my surgery Dr Gireesen, my ortho, personally got me out of bed and walked me down the hall with me all hooked up to my IV pole, my butt exposed to the world but I didn't care. At RIC that had me walk, walk, walk and do balance exercises more than anything plus try to teach me to swallow - I had one of those salva suction things in my mouth like at the dentist because I could not even swallow my own salva, but I could walk.
As I look at it now I am glad I can walk ... I take this over not being able to and having full upper body use with no neuropathy & parethesia --- my areas of concern are specific, they don't travel. You are struggling far more than I and damn I was I could do something about it!
RE: Chair aka Nelli
Yes lonely in all of this ... as I said WIFE doesn't even want to hear about it. She acts as if nothing happened, blocks it out. I keep it to myself and outwardly I don't show my injury - most people at work don't even recall my accident or how I paraded around here in my collar for months. I don't complain - I don't discuss my law suit with any one. I feel very comfortable with you :)
It will be a slow recovery - use Nellie as needed but don't rely on her.
I don't think one of my e-mails through FB went through last nite - meade is honey based; there is a bar I go to near my office Clark Street Ale House that has it homemade in one of those dispensors like in a soda fountain - kind of cool.
Had a nice weekend - air show was pretty nice - Thunderbirds this year as opposed to Blue Angels - the Blue Angels flew over my house last year, could see the pilots in their canope - extremely cool, Thunderbirds stayed over the water for the most part. A lot of beer - went down Milwaukee from Ashland to Damen then walked home in four place pub crawl. Saturday morning errands in the auto (perennial sale at a good garden center, stop at aquarium store for some supplies, grocery store and fill the car up with gas; watched air show from the roof then out locally for bar food and beer; Sunday - coffee, paper, two hours at gym, then air show again on roof then you guessed it a pub crawl up Halsted & Diversey ending up at Delilahs which had a corny Elvis movie on - Calmbake ... so a nice weekend. Now back to work, very slow here - about two hours of work stretched out to eight that I don't like but it gives me time to write you.
It will be a slow recovery - use Nellie as needed but don't rely on her.
I don't think one of my e-mails through FB went through last nite - meade is honey based; there is a bar I go to near my office Clark Street Ale House that has it homemade in one of those dispensors like in a soda fountain - kind of cool.
Had a nice weekend - air show was pretty nice - Thunderbirds this year as opposed to Blue Angels - the Blue Angels flew over my house last year, could see the pilots in their canope - extremely cool, Thunderbirds stayed over the water for the most part. A lot of beer - went down Milwaukee from Ashland to Damen then walked home in four place pub crawl. Saturday morning errands in the auto (perennial sale at a good garden center, stop at aquarium store for some supplies, grocery store and fill the car up with gas; watched air show from the roof then out locally for bar food and beer; Sunday - coffee, paper, two hours at gym, then air show again on roof then you guessed it a pub crawl up Halsted & Diversey ending up at Delilahs which had a corny Elvis movie on - Calmbake ... so a nice weekend. Now back to work, very slow here - about two hours of work stretched out to eight that I don't like but it gives me time to write you.
RE: Chair aka Nelli
Just think how buff your arms will be :)
Yes life was easy before our cord incidents ... minor, usual things like opening a bag are trying. As I enjoy the day my left shoulder is in extreme pain like a large metal clip is around it and up the left side of my neck - my left arm buzzy numb from the elbow down cold even when I am sweating in 95 degree heat, right hand just a notch "better" than left. A bit light headed, conscious of change in elevation, cracks in the walk because my left leg drags behind the right one, lower to the ground so it catches any imperfection, balance an issue as you know --- No one knows but me what my natural daily "sense" is as I walk the world as a "normal" person.
Yes I get it LINDA - we are kindred souls of like spirit!
Yes life was easy before our cord incidents ... minor, usual things like opening a bag are trying. As I enjoy the day my left shoulder is in extreme pain like a large metal clip is around it and up the left side of my neck - my left arm buzzy numb from the elbow down cold even when I am sweating in 95 degree heat, right hand just a notch "better" than left. A bit light headed, conscious of change in elevation, cracks in the walk because my left leg drags behind the right one, lower to the ground so it catches any imperfection, balance an issue as you know --- No one knows but me what my natural daily "sense" is as I walk the world as a "normal" person.
Yes I get it LINDA - we are kindred souls of like spirit!
RE: Chair aka Nelli
I appreciate life, every day, more now ... see the little things and handle the big things with ease. Very little bothers me.
I know you are a Christian - my beliefs many different "beliefs" wrapped up for my personal well-being with the center the classic "Golden Rule."
I don't know how we were created, no one knows but I believe in the spiritual, circular view of Buddhism over the linear Christianity view.
God = Good
Devil = Evil
The personification of each God Good; Devil Evil.
We hold our own destiny - it is not control by some super-being.
With this basic open thought each day is somewhere I want to be and I never want it to stop ... going forward as you say.
Giving as a Giver, expecting nothing in return.
Yes this is a bit lonely at times but I enjoy my own company, who I am.
WIFE calls me FRED the Martyr; she calls herself WIFE-ara the Bitter.
People walk up to me all the time and ask me for directions; people always strike up conversation with me - I think I am very approachable, not showing signs of threat.
WIFE says its because I am still small town but I believe I would be this way regardless and I know my accident and forward has made me a better person in this regard.
If I get the settlement I deserve I will sit down with Dr Gireesen and ask him how I can help people like us. I will enjoy being of service to them both monetarily & as "one of them."
I know you are a Christian - my beliefs many different "beliefs" wrapped up for my personal well-being with the center the classic "Golden Rule."
I don't know how we were created, no one knows but I believe in the spiritual, circular view of Buddhism over the linear Christianity view.
God = Good
Devil = Evil
The personification of each God Good; Devil Evil.
We hold our own destiny - it is not control by some super-being.
With this basic open thought each day is somewhere I want to be and I never want it to stop ... going forward as you say.
Giving as a Giver, expecting nothing in return.
Yes this is a bit lonely at times but I enjoy my own company, who I am.
WIFE calls me FRED the Martyr; she calls herself WIFE-ara the Bitter.
People walk up to me all the time and ask me for directions; people always strike up conversation with me - I think I am very approachable, not showing signs of threat.
WIFE says its because I am still small town but I believe I would be this way regardless and I know my accident and forward has made me a better person in this regard.
If I get the settlement I deserve I will sit down with Dr Gireesen and ask him how I can help people like us. I will enjoy being of service to them both monetarily & as "one of them."
******* ODDNESS HERE
RE: Chair aka Nelli
My head sweats like crazy - I have to wear a cap when I am at the gym - it is soaked threw, sweat dripping from the brim it is so wet with sweat.
I get on the L and I can feel my head sweating, I look around and everybody is "cool" while my head is dripping - I think my scripts are part of this.
I understand how you feel ...
I love wrapping my fingers around something warm like a cup of coffee ... to be perfectly open the act of masturbation is reward therapy, makes my hands feel so good as well as me deep inside.
I get on the L and I can feel my head sweating, I look around and everybody is "cool" while my head is dripping - I think my scripts are part of this.
I understand how you feel ...
I love wrapping my fingers around something warm like a cup of coffee ... to be perfectly open the act of masturbation is reward therapy, makes my hands feel so good as well as me deep inside.
******* ODDNESS HERE
RE: Chair aka Nelli
Anterior Cord Syndrome seems to fit you ... I am Central Cord Syndrome. Yours is far worse ... I want to help you make it go away!!!
You need the right person to give you an intimate massage :) Took me about nine months to achieve appropriate condition to masturbate. Now it is exceptional hand therapy a nice treat, reward as I said, and as I said WIFE is sexless so this is my intimacy. I have had two very nice dreams of you since meeting you, very nice dreams. Hope you don't mind but I think of you now. Makes it even more special. Don't want to seem forward just honest as we are open with each other. So don't be lonely, someone is thinking of you :):)
Never had issues with bowels ... was hard as a rock passing #2 in hospital & RIC but that was from excessive narcotics - they should have put me on softeners. I was incontinent for a while, sometimes still after a long walk.
I am only hypersensitive to heat/cold. I carve heat - hence wrapping my hands around something warm, hot is much desired. I wear gloves when the temperature drops below 60, or have my hands in coat pockets. They are cold to me but not to the person I am touching.
I was out on the roof Saturday and Sunday, got some nice sun but this makes my scar under my jaw line more predominant.
I also have two belly buttons now - they put a peg tube in my stomach for feeding after I was discharged from RIC. I had it in there for about three months then asked to take it out because I was about to eat my food in soft form, or like baby food.
They laid me down on the table ... the doctor was chatting with be telling me to breathe deeply --- as I was doing this he just yanked the damn thing out - knocked the wind right out of me! Now I have a puncture type wound below my left rib cage that is fairly deep or like another belly button. So three nice wound marks.
Halloween is always fun ... usually head up to Boy's Town and watch the parade. Parents are paranoid around here so by the time I get home from work they are already gone. Plus my place is the top floor and there is more or less kind of a store front entrance so I'd have to hike up and down 50 steps or plant myself down at the bottom to be a giver of treats, but as I said kids aren't out after dark these days on Halloween.
Fine motor like typing is difficult but I type a great deal.
Hands ... what is weird is I tend to wake up at night and my hands are so stiff, and many times in a great deal of shoulder & neck pain when I would expect to be most relaxed and without pain. The dangle of my arm causes the symptoms to increase alone. Many times a day of the weekend when I don't go the gym or a day I do nothing per se I am the worse. I do a lot of arm, shoulder and neck exercises - having my hands on top of my head gives me the most relief. Stretching my arms, shoulder back say like laying on the edge of the bed on my back (I can't lay on my tummy anymore) with my arm then stretched out from the bed and then down to the floor feels the best. Seems to open things up a bit.
I saw Green Day when they were just pups long ago at the Aragone ... they filmed it, was on the tube. Fun! Go to many concerts - last was Sir Paul at Wrigley, a great show and I am not even a big fan of him or Beatles.
Never had issues with bowels ... was hard as a rock passing #2 in hospital & RIC but that was from excessive narcotics - they should have put me on softeners. I was incontinent for a while, sometimes still after a long walk.
I am only hypersensitive to heat/cold. I carve heat - hence wrapping my hands around something warm, hot is much desired. I wear gloves when the temperature drops below 60, or have my hands in coat pockets. They are cold to me but not to the person I am touching.
I was out on the roof Saturday and Sunday, got some nice sun but this makes my scar under my jaw line more predominant.
I also have two belly buttons now - they put a peg tube in my stomach for feeding after I was discharged from RIC. I had it in there for about three months then asked to take it out because I was about to eat my food in soft form, or like baby food.
They laid me down on the table ... the doctor was chatting with be telling me to breathe deeply --- as I was doing this he just yanked the damn thing out - knocked the wind right out of me! Now I have a puncture type wound below my left rib cage that is fairly deep or like another belly button. So three nice wound marks.
Halloween is always fun ... usually head up to Boy's Town and watch the parade. Parents are paranoid around here so by the time I get home from work they are already gone. Plus my place is the top floor and there is more or less kind of a store front entrance so I'd have to hike up and down 50 steps or plant myself down at the bottom to be a giver of treats, but as I said kids aren't out after dark these days on Halloween.
Fine motor like typing is difficult but I type a great deal.
Hands ... what is weird is I tend to wake up at night and my hands are so stiff, and many times in a great deal of shoulder & neck pain when I would expect to be most relaxed and without pain. The dangle of my arm causes the symptoms to increase alone. Many times a day of the weekend when I don't go the gym or a day I do nothing per se I am the worse. I do a lot of arm, shoulder and neck exercises - having my hands on top of my head gives me the most relief. Stretching my arms, shoulder back say like laying on the edge of the bed on my back (I can't lay on my tummy anymore) with my arm then stretched out from the bed and then down to the floor feels the best. Seems to open things up a bit.
I saw Green Day when they were just pups long ago at the Aragone ... they filmed it, was on the tube. Fun! Go to many concerts - last was Sir Paul at Wrigley, a great show and I am not even a big fan of him or Beatles.
Didn't mean ...
didn't mean to bring up bad memories with one of the sites I sent today ... I just like being totally aware of what's what to help be understand and better deal with physical issues ... I think I have the mental part down --- I just want to know why?
- FRED
- FRED
RE: Didn't mean ...
I know ... I am here to chat with about it ... don't forget!
RE: Didn't mean ...
Must of had "fun" on the train to Chicago if its anything like the L.
Yes LINDA you are suffering far more than I, but I don't feel guilty (silly) but I am concerned for you.
I don't pray often but to pray for you should not hurt the cause :)
Hang in there!!!
Yes LINDA you are suffering far more than I, but I don't feel guilty (silly) but I am concerned for you.
I don't pray often but to pray for you should not hurt the cause :)
Hang in there!!!
As you say "everyone is different"
Which is true ...
On the same day as me, but a little earlier in the day a man about my age fell outside the Borders on Michigan Avenue ... he sustained essentually the same injury as I did "hangman's fracture."
On the same day as me, but a little earlier in the day a man about my age fell outside the Borders on Michigan Avenue ... he sustained essentually the same injury as I did "hangman's fracture."
Christopher Reeve had a hangman's fracture ... the other man was still at Northwestern when I left RIC and was headed to RIC after I left. When I saw Dr Gireesen who also treated the other man in late September he was still at RIC, a quad.
The same neurosurgeon worked with Dr Gireesen for the other guy. How did I dodge the bullet? I don't know ... at times I attribute it to being in good shape from extensive cycling and other cross training and I pay tribute to the paramedics who recognised my injury straight up and took care of me. There was also a person at my head when I woke up holding me there (as if I could move) - I could hear him talking. He is on the police report as a witness but can not be found now.
Anterior cord syndrome is too severe for you as I read it. You no doubt have Central Cord as I do but have issues with bowels and lower extremities in a way I can imagine ... again I wish I could do something for you.
My doctors say I came through the "other side" and was "to hell and back."
I will tell you more as to other conditions soon and how I dodged another bullet - cancer.
Hope you have a good nite sleep
heading up to the roof top to enjoy some alone time under the stars - thinking of you ...
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